March of Dimes


Saturday, January 30, 2010

Big Caleb Update






Its been a few days since our last post, here are the updates:







  • Caleb has gained a lot of weight over the past few days, he has hit 3lbs!!!!! and last night he weighed in at 3lbs 2.4ounces!



  • Last Sunday he was moved from Patient Controlled isolet to Air Controled and is now in Clothes!

Tuesday, January 26, 2010

1.26.10 Caleb Update

Caleb is now 2weeks old and 1day old! here are a few new updates:


  • He gained the weight he lost sunday night back last night at his weigh-in, so he is now 2lbs 14.9oz.

  • since he has kept his weight above 1250grams he is now in the isolate as air controlled, not patient controlled. which means he gets to wear clothes!!!! last night they put him in his first onesie and he is super cute!

Sunday, January 24, 2010

1.25.10 Update

It has been a few days since we last posted an update and Caleb has made some great strides over the past few days.

Saturday night when Caleb was weighed he gained 1.6 ounces, then tonight he lost 0.5 ounces. It's expected for him to gain and lose weight but we weren't expecting that much of a difference.

Friday the NNP decided that since he has done so well with his O2 levels and have not had any issues that he was able to lose that sensor!!! One less lead!!!!! So now he only has heart rate senors and his feeding tube!

Today the NNP decided that when we bottle feed once a day that he only gets 10cc instead of his full feeding amount. This is to help him not to burn a lot of calories trying to feed from the bottle. Today he took 8cc of his 10cc.

We started practicing breast feeding and he is starting to catch on. We again are only doing this once a day too. He is starting to figure things out, and when we are holding him at the beginning of his feeding he is rooting around and looking for his meal.

Right now we are just praying that his weight continues to go up and not down. The sooner he gains weight the sooner he will be out in an open air bed and will be able to take more bottle/breast feedings.

Thursday, January 21, 2010

1.21.2010 Update


Caleb had another good day! We continue to praise God for each milestone and good day he has.

Today he had under 2 residual after each feeding, and is now at 25cc. At his 2am feeding he will go up to 26cc and stay there for awhile. Tonight we did his bottle feeding again, and he did very well, he took 8.5cc of his 25cc. We were not thinking he would take that much tonight.

The nurses and doctors mentioned to us today that this next week might get a little frustrating for us. Due to us not seeing the changes and him hitting many or any milestones this week as the last week or so. We ask for prayers on keeping our hearts calm and spirits up over the next week. The staff in the NUCI expect him to just continue to grow and learn to take the bottle more and more.

Thank you for all of the prayers, support and love.

Wednesday, January 20, 2010

Caleb Update 1.20.2010

We just got back from family time at the NICU. Caleb is making great strides today. I was in this morning for his 11am feeding and talked with his NNP and she agreed to letting him try a bottle at his 8pm feeding.

He took 7cc of his 22cc feeding, they aloud him to try the bottle for 30min and anything after that any that was left they did the gravity drop into the feeding tube. Towards the end of the 30min he was getting tired and fell asleep. The nurses were very happy at what he took, and it is a good starting point.

They weighed him again tonight and he is up to 1247 grams, which is 2lbs 12ounces. we are 1 ounce shy of his birth weight!!

His labs came back and his platelets are almost back to normal, and billirubin is down to 5.2, so no more billilights!

God is good!!! We contuine to pray for contuined wieght gain over the next few days and for the bottle feeding to go well and for him to take more and more from the bottle!

Tuesday, January 19, 2010

Quick Update


Today Caleb is up to 19cc per feeding and is doing very well. he is rooting more and more, and taking his paci more during the feeding.


His ultrasound came back clear, from yesterday!


A Physical Therapist stopped by and evaluated him. She said that everything looks good, and that she will start making weekly visits to check in while he is there.


Josh was able to stop in before work this morning, and was able to change his diaper for the first time!! Way to go Daddy!


Josh and I are going up for his 8pm feeding, and will update with his new weight and any other updates tomorrow!

Monday, January 18, 2010

Back from Caleb Visit 1.18.2010

We just got back from Caleb's 2pm feeding. He had his ultrasound done this morning and everything looked good. He is up to 17cc today for his feedings, just over a half an ounce. The nurse mentioned that at his 11am feeding he was "rooting" around (looking for something to suck on) so they are giving him his paci more now at feedings so that he associates sucking with his tummy getting full. The staff mentioned they might introduced a bottle here in the next few days!!!

Each day he is more awake and looking around. And such a blessing.

Caleb Update

Morning! Josh and I went to visit Caleb last night at his 8pm feeding. He was up to 14cc for that feeding, and only had less then 1cc left from his 5pm feeding, which the nurse was very happy about.
He was weighed and has gained 1.2ounces, so he is at 2lb 11.5ounces. And has grown .25inches, total of 16inches long!
We are waiting to here results from his ultrasound he had this morning and should hear the results later today. Caleb's IV went bad this morning, and for now they have decided not to replace it. He was on the lowest dose of IV Meds and since he is doing very well with his feedings they did not see the need to replace it in his other foot.

God is SO GOOD!!!! PLease contuine to pray for little Caleb to grow stonger each day.

Friday, January 15, 2010

What's in a Name?


What is in a name? Our first born son was named by Sarah and myself this Tuesday (January 12, 2010). We chose to name him Caleb James Black. A common question already is where his name came from. Clearly, little thought was put in by us on his last name. His first name though... We chose Caleb as his name because we both liked it and it's occurrence in the Bible. In the Old Testament, Caleb took over leading the Isrealites after Joshua. We thought this was a fitting choice as we have talked much of legacy and pray daily over his soul. As for James, I wanted a middle name starting with "J" and Sarah mentioned James not knowing my intention. Sorry there wasn't anything more special in that part. Thus, he became Caleb James Black.

The Ride of Life!

Happy Friday!

So, we have had a CARZY last week. It all started last Friday (January 8th, 2010) night when Sarah noticed more swelling than usual. Due to a history of high blood pressure we have a blood pressure cuff at home. It tested to be 170/117. She called the doctor on-call and he told her to lay down for the night and call in the morning if it was still high. (neither of us are happy about those instructions) The next morning her blood pressure tested at 175/115. We then called the doctor on-call (a different one was on-call). He instructed her to go to the maternity ward at the hospital to get checked out. The doctor conclude on Saturday that it was a reaggrivation of her previous high blood pressure. He prescribed medication and sent her home to take it easy for the remainder of the weekend.

Fast forward to Monday afternoon. Sarah’s blood pressure was still very high (165/112) at noon when she left work for the day. I asked her to give me peace of mind and call the doctor once more for verification that it was acceptable. The doctor was not pleased with the maintained levels and asked her to come in once again. Our good friend and neighbor drove her to the hospital where I met her straight from work a little after 4pm.

The doctor on-call at this point was Sarah’s doctor from her OB practice. This made us very happy. He was not pleased with Sarah’s blood pressure and given her symptoms, he diagnosed her with preeclampsia. From what I recall, the cure for this is to deliver. The risks involved are stress on the baby, continued stress on Sarah and an increased risk of seizures for Sarah. At about 5:30, the doctor admitted Sarah for monitoring of her and the baby. He speculated she could be induced on Wednesday. As the evening progressed, and Sarah’s blood pressure remained high, the doctor became more concerned. Around 7pm he began to speak about a c-section. He said that he was concerned about the baby’s lung development due to him being only 32 weeks along. He gave her a dose of steroids to help with the baby’s lung development. Doses needed to be separated by 24 hours and he wanted her to get two doses for the best effect. This concluded we were looking at a c-section on Wednesday morning. However, Sarah began having consistent contractions was dilated and the baby’s heart beat was at a good rate, but flat. It was also apparent he was not reacting well to contractions. At 9:30pm, the doctor stated we were having a c-section birth at 10pm.

At 10:32, we smiled at the sound of a crying baby. He weighed in at 2 pounds 13 ounces and measured 15.75 inches long. Oh yeah, I said “he”. Haha, that was a funny one. I sat at Sarah’s head keeping her company through the procedure and the doctor told me “Dad, why don’t you go see what you have over there”. So I went and smiled ear to ear. I stood there a moment soaking it in. I was brought back to when the doctor said “Dad, why don’t you let mom know what you have”. That was when we finally got to breath some relief for the first time in 6.5 hours as I told her she had just delivered our son.

That night we got to see him in the NICU on our way back to the room. I got to go visit him before sleeping that night and settled down to sleep at 2am. On Tuesday, Sarah got to hold him for the first time. She did what they call “kangaroo” where she holds him skin-to-skin on her chest. Tuesday afternoon we named him Caleb James Black. She then got to hold him on Wednesday and I got to kangaroo him. That was the most amazing thing ever. He was curled up against my chest. This was the first time he had both eyes opened. He looked right at me. I really cannot explain it, but can tell you it was so amazing. He was on a CPAP machine to help him with breathing the first night and at 12 hours old was downgraded to just oxygen. By the time he was 24 hours old, he was taken off of oxygen and breathing on his own! We were so excited by this because at 32 weeks his lungs shouldn’t be that strong. Wednesday Sarah got unhooked from everything and treked down to see Caleb on her own by foot at 4am. He has cleared so many hurdles. On Wednesday afternoon, they said his jaundice was bad enough to need a “billy blanket” (light to help his levels).

Sarah was released on Thursday afternoon. We stuck around for one last feeding before going home for the night. As it stands now, Sarah is doing well, spare some expected pain. She is doing great though and I am so proud of her for how she tackled the whole situation. Caleb is doing great. He is still on the billy blanket, but levels seem to be improving. He is having a central line installed today to keep them from having to move his IV around every 36 hours. It seems as though he is beating all odds and doing better than expected by even the doctors and nurses. He is truly blessed and a product of much prayer. Thank you. Monday was a very emotional ride, but your prayers were felt. It is clear the doctor made the right decision and the symptoms helped him to make a decision confidently. We continue to ask for prayers as he remains in the hospital and we are at home. We ask specifically for prayers in his growth and development, the doctor’s and nurse’s decisions, Sarah’s recovery and our coping with separation from him. Also, join us in giving praise to our heavenly father for all of the blessings in just this past week! He is so awesome and worthy of so much praise. They say he could go home in just a few weeks! We can visit him 22 out 24 hours every day and the staff is great there. Thank you for all you have done and all you continue to do. Many of you have asked what can be done to help. At this point meals is the biggest help. Our great friend and neighbor Jennifer Deboer is coordinating our meals. She is so awesome! Please let her know if you are interested in helping by emailing her at jenndeboer@gmail.com. You can check out all of the latest pictures here.

Thank you for your care and interest. May the Lord bless you for all you have done for us. Keep checking back for more updates as Caleb continues to clear hurdles placed in front of him.